Archives

Getting back out there and the power of harvest season…

It has been far to long since my last blog post. After 36 years of surgeries for my Congenital Heart Defects and one very traumatic hospital event, I developed (or was struck by) PTSD and so much of what made me the person I love just seemed to vanish for awhile. I have been doing […]

Read More

Exploration and Limitations: a CHD road trip

The first thing I thought when my cousin told me he would be coming over from the east coast for a visit was pure joy! I had spent many summer traveling around with him when he was younger…I was the driver and he held the maps, we always got lost and we always had an […]

Read More

The Traveling Heart (aka Congenital Heart Defect Awareness Week)

Hi friends!! Well, the second annual Traveling Heart for Congenital Heart Defect Awareness Week has come and gone, February’s Heart Health month is over and March has rolled in with it’s storms and rain. This year “The Traveling Heart” connected me to some amazing people on Instagram/Facebook and brought awareness to so many people. However, […]

Read More

The Lightness of Living

It’s a luxury that most people crave and it’s something that people pray to experience more. The lightness of living. I woke up feeling tired, like most mornings and wondering what the day was going to bring. Most mornings I wake already with a deficit…it’s almost an immediate feeling of dread. “If I’m tired now, […]

Read More

The Reality of Writing the Truth

If you ask me what my idea of heaven is, what I picture what it will be like after I’m gone from this world…it is one long stretch of beach and I’m running. Everything flows right, I can actually feel my heart beating and it is strong. I have air in my lungs, I take […]

Read More

The Art of Panicking

Is there an art to panicking? There is a school of thought that says in order to combat attacks, you need to stop fleeing from the situations or things that cause anxiety. But what if the thing that causes you panic is actually implanted inside of you? I think I’ve mentioned this before, but recently […]

Read More

The Exaustion of being Brave

So here is the hard truth, the one that I think sometimes people don’t say. Being brave, having miracle moments, beating the odds, overcoming a traumatic situation are quite possibly the most exhausting moments of your life…ahem…I’m exhausted.

Read More

The young and disabled (title for a new reality show?)

I’m out at the coffee shop and I run into someone I haven’t seen in awhile (this happens often now that I am back in my hometown). Then it happens, the inevitable question is asked…”So what are you up to these days? Where are you working now?” My palms get sweaty, my heart starts to […]

Read More